Cancer is complicated. There are dozens of types of cancer and each may have several subtypes. The appropriate treatment options and prognosis for each type of cancer will also vary significantlly by patients’ demographic characteristics, cancer genotypes, and other factors.
The complexity of cancer means that a massive amount of health data is necessary – 2.5 petabytes by an NIH estimate – to really understand the best treatment courses for different types of cancer. The effort is so massive that Vice President Joe Biden has made it his personal mission to make significant progress on cancer, saying:
…the science, data, and research results are trapped in silos, preventing faster progress and greater reach to patients. It’s not just about developing game-changing treatments — it’s about delivering them to those who need them.
The importance of making data available to inform treatment is at the core of our work with CancerLinQ, a growing leader in the ongoing effort to find meaningful improvements in cancer care. By combining massive amounts of cancer data from member practices into a national database, CancerLinQ can help researchers and clinicians uncover new insights into the details of cancer and make better treatment decisions. Our healthcare interoperability solutions play a part in delivering all that data where it needs to go.
Yesterday at HIMSS, U.S. Health and Human Services Secretary Sylvia Burwell outlined new efforts to increase healthcare data interoperability between electronic health record systems, including fines for vendors who engage in data blocking. She also emphasized the importance of empowering patients with access to their own electronic health records, a familiar dilemma to any cancer patient who moves or travels frequently.
CancerLinQ is on the cutting edge of applying interoperability principles to solve a devastating and difficult medical problem. We’re proud to be part of this effort. Watch this video testimonial from CancerLinQ’s Chief Solutions Officer, Rich Ross, to learn more about our work with this phenomenal organization.
Still need more detail? Stop by booth 12332 at HIMSS16, or contact our healthcare team: